CeliAction Study Seeking Volunteers

This is a sponsored post written by CeliAction. If you are diagnosed with celiac disease, I think it is worth your consideration. Any questions you leave in the comments will be responded to by a CeliAction representative. You might want to first refer to some answers that were given in the comment section of the CeliAction post I published last month.

CeliAction Study Seeking Volunteers | The Gluten-Free Homemaker

National study to help advance celiac disease research

The CeliAction Study is a clinical research study designed to evaluate an investigational drug for celiac disease. The study will explore whether the investigational drug is able to improve the damage in the lining of the intestine caused by ingesting even small traces of gluten. The study will also evaluate whether the investigational drug improves any symptoms of celiac disease.

You may qualify for the CeliAction Study if you:

  • Have been diagnosed with celiac disease by a healthcare professional
  • Are attempting to be on a gluten-free diet
  • Have experienced at least one moderate or severe symptom of celiac disease in the past month

There are other criteria that you must meet to qualify for participation. The study staff will explain the requirements to you and answer any of your questions.

As a volunteer in a clinical trial, you may:

  • Participate in a research process that may lead to new treatment options
  • Learn new information about your health
  • Receive study-related care from qualified physicians

To learn more about this research study, visit CeliActionStudy.com or call 1-855-3333-ACT.

This post may contain affiliate links. See my disclosure policy for more information.


  1. Kyle Wiesen says

    I was diagnosed with celiac disease after my second child was born 8 years ago. I would love to help find an answer!!!!

  2. Ellen Elliott says

    I would love to take part in this study. I have not been diagnosed as having celiac but do have a gluten sensitivity.

  3. Courtney says

    I have been diagnosed as non-celiac gluten intolerant. Please let me know more information.

  4. Andrea Desrosiers says

    I was diagnosed about 5 years ago and have had a hard time sticking to the gluten free diet but do the best i can. I suffer from stomach aches, nausea, vomiting and diarreah if eating gluten and also suffer migraines and depression that could be effected by the celiac diesase

    • Tracy Gale says

      Are you aware that not following a gluten free diet for those who are celiac can cause permanent damage to the intestine and you will need tobe feed through an I.v.? I dont know if you have havecever had this happen but it isnt nice. Your body will no longer be abld to absorb nutrients, you will slowly, painfully waist away if your not fed otherwise…. please be sensible, if it isnt an intolerance.

  5. leah says

    I was diagnosed with celiac disease 1 year ago. My dad was diagnosed 4 years ago. I have been totally gluten free with no cheating for a year.

  6. Tracey Rochford says

    Hi im a diagnosed ceoliac and am on a gluten free diet if I could help in any way I would love to. Im 40 and am mum too

  7. Adlinda McKernan says

    I was diagnosed with Celiac disease in September 2012. Still have pain,I would be interested in participating in the study.

  8. Mandy Childers says

    I Am Interested In Participating In Your Study. DO You Have To Be Diagnosed With Celiac Disease For A Specific Amount Of Time?

  9. Elizabeth Kelly says

    Dx with celiac disease in December after intestinal biopsy. Attempted to be gluten free since but was hospitalized in feb for non related condition. Hospital provided gf menu but I bloated and in excruciating pain for three weeks. Screamed in pain in my sleep and stomach was hard and board like. This is my 5th autoimmune disease, including MS. since going gluten free, I am now able to walk and even jog a few miles. I was in a wheelchair/crutches for about a year.

  10. Toni Jucal says

    I’m already allergic to many things, over the years suffered from rashes, hives. And belatedly realized I’ve been suffering from GI problems too. I had anaphylaxis in 2011 and finally diagnosed with gluten allergy. I have not read it anywhere but in my case I get a hive or rashes when I eat gluten.

  11. Jayne Gayda says

    I have been diagnose with coeliac disease, I have also been following the gluten free diet for the pass four years.

  12. Kylie Fenton says

    My 2 son’s aged 3 years/ 21 months and I have tested positive for the celiac gene and have been living gluten/dairy free for over a year now.
    I would like to know more and may be interested in your trial.

  13. Jennifer Dawson says

    I have been diagnosed 5 years and really try to follow a GF diet, although I still have symtoms as in aching joints, bad stomachs, fatigue. my son is currently awaiting the endoscopy after testing positive by blood test. I would need to know what is involved.

  14. Beth Van Dyke says

    I was diagnosed with Celiac 1 1/2 years ago and have been gf ever since with no cheats. I am so sensitive, I cannot have anything cooked in a pan that had gluten in it without it being washed first (ex pancakes).

  15. Kristen says

    I would love to participate in a trial. I got diagnosed with celiac disease 8 years ago. I follow a strict diet but still have symptoms

  16. Kelsie Foster says

    Diagnosed with gluten sensitivity about 10+ years ago after having severe stomach pains for three years. My last SEVERE stomach pain was about 5 months ago and I’ve been on a gluten free diet forever. I still get little stomach pains almost everyday and I experience migraines and nausea for weeks at a time. I was just wondering what all this entails and where it is taking place?

  17. Jessica McCann says

    I was diagnosed at 15 and have lived with the disease for 20 years. I have good days and bad days. Avoiding gluten for me has become second nature. I have learned to live without it in my everyday life.

    • Stefanie says

      Clinicaltrials.gov currently has a listing of the cities where there are doctors who are participating in the study. You can also visit http://www.CeliActionStudy.com to see if you qualify and find a doctor nearby. Just so you know, the company I work for developed the website and is helping the pharmaceutical sponsor get the word out about the trial.

  18. Nancy Macy says

    Myself and 2 daughters are gluten free. One diagnosed by a doctor. Myself and youngest are doing because of similar symptoms and feel much better being gluten free.

  19. shawneen scharmer says

    I have be diagnosed with celiac fir over 6 years. Any help would be welcome. My husband has a brain injury I work full time and we have 4 kids and a tight budget.


  20. Susan Wynne says

    I was diagnosed with coeliac disease 6 years ago after I had my son and would be interested in helping to find a solution if possible. If I do accidentally eat any gluten, even the smallest amount, I get extreme cramping up to vomiting migraines and depression. Coeliac disease runs in my family as my father has had it from birth so if I can help feel free to email me.

  21. Tracy Gale says

    Diagnosed and been living gluten free for 5yrs. Have digits(acronym) need to have my bowel removed. Dont know if that matters for this but would certainly love to help do anything for next generation.

  22. SARAH Miles says

    I got diagnosed around 2 months agowoth celiac disease. Since then, my iron levels have gone down low enough for me to be anemic and any other nutrients I eat are doing the same thing. I’m doing my best but sometimes I slip and accidently eat gluten. I can always tell within a few minutes.

  23. Britni Barnason says

    I was diagnosed with Celiac’s Disease on Valentine’s Day of this year. I am 16 years old and haven’t cheated since day one of my diet (not even to eat my Valentine’s candy). I would really like to take part in this study to find a cure. It can sometimes be hard when going out to dinner with meals being more expensive because my mom is a single mother of three with all of us the same age. I have a twin who was tested but her results came back negative which is unlikely due to Celiac being extremely hereditary. Right now we are in the process of her going for a more extensive test to double check the first results. We’ll see what happens.

  24. Taniesha says

    I am a new Celiac. A couple of months new. When I was diagnosed my Doctor said me to ” when I recieved your results it shocked me, I have been working with Celiac patients for 10 years and have not seen one as bad as yours in a long time, only one other person has had it as bad as you do.” Anytime I eat gluten my body does horrible things. I get bloaded for a week, I get pain in my chest, pain in my legs. I sleep 16 hours a day or more. I get nasuea, I can’t eat during the week because I get sick. A new thing is my legs go numb and after that so do my hands. When I eat gluten my body gives up, I can’t do anything, my mind wants to but my body physically can not. It’s been a hard transitioning, I still do not know what’s good and what’s bad. Every day I google everything I eat, I still cross contaminate but I’m slowly learning. Each day is hard but it’s good to be healthy. I would like to be a volunteer and help other people who suffer from Celiac Disease.

  25. Theresa Canjar says

    I have had celiac for 15 years and still have trouble. I’d love to help find answers.

    • Stefanie Daichendt says

      If you go to celiactionstudy.com, you will find out whether or not you’re eligible to participate in the study. [Just so you know, I am helping the pharmaceutical company raise awareness about their study]

  26. Luanne Young says

    I do meet all qualification criteria and very interested in participating in this study.

    Thank you!

  27. brooke hickmott says

    I have celiac and low immun. A also had blood work and a scope done to diagnose it. also gerd so diet is important to me.

  28. Amanda Lydick says

    I was diagnosed in OcTober after years of not knowing what was wrong!! I have been following a gluten free diet since then, but find it very hard to do!! Would love to help!!

  29. Carolyn mcghghy says

    I have had celiac disease for 8 years now and been on the diet for 6. I still have symptoms from time to time probably from contamination. But before going gluten free I had seizures and neurological problems as well as adrenal fatigue and other debilitating symptoms. My sister…mother…nephew and I all have it as well. I would love to be part of the study to find something that can help!

  30. Christine Armington says

    I am very interested in taking part in the study. I was diagnosed with Celiac disease May 2014, I am 40 years old. My father qas diagnosed a few years ago. I have been sticking to a gluten free diet, but occasionally still have issues, possibly from cross contamination.

    Thank you!

    • Stefanie Daichendt says

      If you go to celiactionstudy.com, you will find out whether or not you’re eligible to participate in the study.

  31. Phyllis Eller says

    Daily strive to learn about a Wheat-free diet….diagnosed by a Gastroenterologist MD, 2010/May, hospitalized for vomiting & ataxia.

  32. Mary Harrington says

    I was diagnosed with IBS in 2009. The test for Celiac returned a negative result at that same time.

    I am hypothyroid (diagnosed in 2001). I weighed approximately 135 when first diagnosed with both diseases. I have more frequent episodes of vomiting, dirreah and annorexia. I weigh 100.2 this morning. My weight hovers between 98.0 and 108.0. Even though I suffer with anorexia. I eat 5 healthy small meals a day. I am interested in a glutin free diet plan and could use medical guidance. Thank you for considering me for your study.

  33. Angela Meeker says

    Please consider me for this trial. I have been diagnosed with Celiacs now since 2009. I follow what I feel is a careful GF diet as well as household but still am sick feeling all the time. Sadly, most insurance companies don’t recognize Celiacs yet and won’t pay for some of the follow up like dieticians etc. So I’m left to research on my own. My mother passed away from Celiacs at age 65. I was diagnosed 2 years after her death after becoming deathly ill and sent into emergency surgery due to a gallbladder and liver infection.

  34. Stephanie Engleman says

    I am 19 years old and was diagnosed with celiac disease 3 years ago. Although I do follow the strict gluten free diet I still experience stomach pains, nausea, vomiting and migraines weekly and can’t figure out why. I would very much like to participate in this study.

  35. Jennifer S. says

    I was diagnosed with celiac disease 9 years ago.Two of my brothers, my daughter, and 4 nieces all have celiac disease.

  36. Brandi says

    I am very interested in this study. I am tired of the negative effects I have experienced from gluten and would love to learn more about this disease.

  37. Daniel oliver says

    Diagnosed at 23 during very stressful times…. Recently in last 2/3 months have got dermatitis herpetiformis really bad and have a bad rash all over my body. Along with this If I even touch gluten the rash gets 10x worse and I feel the worst pains in my lower guts and it takes about a week for the pains to really go away.

  38. Mandy Haden says

    I went to a dietician yesterday who has wrote a letter to my Dr to be tested….
    I’m tired all the time, severely bloated, have become Lactose intolerant, have Dirreah every day, tummy pains and nausea. I’m so sick of feeling like this and I want my life back.

  39. Tonda Crane says

    I would like to participate in this study. I was diagnosed with Celiac about 6-7 years ago. I have struggled with maintaining a gluten free diet. In 2013 I was diagnosed with Hashimotos Thyroid Disease which the doctors believe is tied to Celiac.

  40. Claire Simpson says

    I was diagnosed with coeliac when I was a baby I am now 26 and haven’t always stuck to my diet which I know can be fatal but it is soooo hard and gluten is in everything and you get very little to buy from shops only recently have I noticed they have started selling a little more in the free from section like stock cubes and stuff but there’s a lot of stuff I love that you can’t get gluten free I love my home made curries but the curry sauce/powder has gluten in it too !! I’d love to try this to see if it helps , it’s a task in itself when I’m myself an have 3 kids to look after and I usually just have some of what they are having I just wish I could find more stuff that’s enjoyable than yucky with no taste which I find a lot of gluten free food is..

  41. Rosemary Manchester says

    I would be interested in taking part in your study. I was diagnosed about 10 years ago, and while I try to live gluten free, I do occasionally accidentally eat it in some form and have severe reactions. Thank you for your consideration.

  42. Ann Marie Saam says

    I was diagnosed with celiac disease 4 years ago. I would love to participate in your study. I eat gluten free and I still have fatigue and joint pain.

  43. Margie Little says

    I was diagnosed with Celiac Disease 7 years ago. I would like to participate in tbe study

  44. Kirk Powell says

    I would like to be considered to be a participant in this study. I was diagnosed with Celiac several years ago. Thx

  45. Wendy Schemmer says

    I have been diagnosed with celiac for 2 years now. I was diagnosed by a biopsy and blood test by Dr Diaz-Arias in Columbia MO.

  46. Mrs. Martine Whiting says

    I was diagnosed 12 years ago with a bowel biopsy/blood test. Not under control. If would be a blessing to be a part of this study!

    Kind regards,
    Martine Whiting

  47. Brenda Ogle says

    I have Dermititus Herpetiformis which is the skin form of Celiacs. Was diagnosed 7 years ago. I am totally gluten free and would love to help find a cure for this.

  48. carol fletcher says

    I was diagnosed With CD ten years ago, after blood test and endoscopy.
    I try to follow a GF diet, but because I don’t have obvious symptoms, I sometimes eat things that may have been contaminated.
    Before I was diagnosed, I suffered from painful bloating and severe hives.

  49. Michelle Valentino says

    I would love to participate in the study. I have had celiac disease for the past 5 years. I cannot have any gluten at all. I cannot believe that people would go on a gluten free diet if they didn’t have too. I still feel miserable and have gained weight. I do however, feel better than I did relative to the stomach and intestinal issues. I have had my entire family eat gluten free at home as well, they don’t seem to mind. My doctor said that if I didn’t stop eating gluten that it would develop into intestinal cancer. A cure found would be a blessing!

  50. Maria Eugenia de Mendoza says

    Would you be willing to work this study autside de USA? I live in El Salvador, Central America and was diagnosed as Celiac for over 3 years now. We do have an association for Celiacs and sensitives to wheat gluten that I am sure would be interested to hear/be part of your study. You will not believe the amount of Celiac’s in our country needing as much guidance and help!!

    • Stefanie Daichendt says

      Unfortunately at this time the CeliAction study is only recruiting patients at select study sites. Please check http://www.clinicaltrial.gov to find out if new sites becoming available in the coming months. [FYI- the company I work is helping the pharmaceutical company get the word out about the trial.]

  51. Melanie Avjean says

    I was diagnosed by a Gastrointerologist approx 6 years ago via endoscopy. I eat a gf diet and would like to know more about being a study participant.

  52. Ashley enoksen says

    I have celiac and have been living with it for most of my life but didn’t realize it till I was over 27 years old. I am 30 now.

  53. Carla mccreadie says

    I was diagnosed last year aged 15 I have suffered severe symptoms but never previously able to relate this to any particular food now I follow a strict gluten free diet. My biggest worry is eating away from home and peoples lack of understanding of the condition and the impact it can have on someone with coeliac disease.

  54. Michelle Beaumont-Smith says

    Diagnosed in 1999. Live gluten free but also have fibromyalgia which can be linked to Coeliacs Disease as an auto-immune disease. Suffervfrom bloatedness, chronic pain and fatigue. Would love to be part of this but live in the UK …..

  55. Mercedes says

    I live in Argentina and I was diagnosed of celiac disease after my 4th son was borned he was diagnosed first.

  56. Erica says

    I was diagnosed with celiac in 2009 and have been eating Gf since. I was suffering with celiac for approximately 20 years before my diagnosis. When I accidentally ingest gluten my mood changes drastically along with other physical symptoms.

  57. Ashley Harrison says

    I haven’t been formally diagnosed but through clean eating, I have now determined my body is very sensitive to it. I break out in hives and end up with a very upset stomach after eating anything with gluten in it.

  58. Kirsty says

    I was diagnosed with coeliac disease when my daughter was a month old, it’s left me financially crippled at least. I still manage to eat gluten at least once a week :( horrible grounding pain making it impossible to care for my toddler. A cure would be like the best thing to ever happen!

  59. Jessica Merkel says

    I have known that I have celiac disease since I was 7. I would really like the chance to help myself and others be able to live easier with celiac disease.

  60. nancy ribok says

    I was diagnosed with celiac disease 19 years ago. I am on a gluten free diet and am trying to remove all grains from my diet. My daughter also has celiac disease. When I accidently eat something with gluten my abdomen gets hard and I will usually vomit and feel ill and weak for the rest of the day.

  61. Carrie Piazza says

    I was diagnosed with celiac disease in Sept. 2013. It’s a very hard thing to deal with, any help would b great!

  62. Jackie Lyle says

    I was diagnosed 10 years ago. Still have my ups and downs unfortunately, so I would love to help in the study.

  63. Barbara anderson says

    I would like to help I was diagnosed about 5 years ago I have been on a gluten free diet since but I am very sensitive to any little bit of gluten so find cross contamination a problem

  64. Kelly Bock says

    I was diagnosed over three years ago, strict diet but I suffer from migraines still, anemia and left side weakness, all of which neuro says is due to celiac. Would love to participate!!!

  65. Tracy Dutiel says

    Diagnosed with Dermatitis Herpetiformis and given Dapsone to stop the reaction. Was necer told anything about a gluten-free diet until a year ago. Off Dapsone but finding gluten free that is good is hard on so many levels. Would love to participate and be able to learn more!

  66. Brigid says

    Diagnosed with cd in 2010. Had a fractured heel and have been told it’s osreoporotic. I’m in Melbourne, Australia

  67. Archana Malhotra says

    Hi. I ve been diagnosed with coeliac since last year. My attempt to stay gluten free are not very successful. Still struggling to find a good solution. Hope you can help.

  68. says

    I have the whole GI reaction, as well as dermatitis herpetiformis. I am extremely careful, but still experiencing symptoms. I would love to help so others may be spared this.

  69. Sherry says

    I was diagnosed with celiac about 5 1/2 years ago. Was so sick I had to be very careful. If I thought about eating my stomach would hurt. Now after being very careful I can eat some things with only small stomach aches always diariaha a gas but sometimes it’s just worth it.

  70. Janette says

    I would love to take part in this study i was diagnosed over 12 months ago and its been a roller coaster ride for me

    • Stefanie Daichendt says

      If you go to celiactionstudy.com, you will find out whether or not you’re eligible to participate in the study.

  71. Jennifer Reid says

    I was diagnosed in June after years of being very ill. I am completely gluten free but of course encounter surprise attacks from unexpected food. I would love to participate.

  72. Carl Meredith Jr says

    I’m 14 and was diagnosed a year and half ago after being sick all my life. I want to help any way I can so others my age won’t have to suffer like I did. I am gluten free and still have issues with fatigue, joint pain, and stomach pain.

  73. Debbie Coe says

    Diagnosed with celiac disease over 15 years ago…after my second child was born . There were complications and we believe that those circumstances threw the Celiac disease our of “remission” so to speak and became active.

  74. Debra Adams says

    I was diagnosed in 2010. It is a life altering experience. I feel good as long as I eat at home, but dining out can be adventurous.

  75. Debra Adams says

    I would live to help the researchers find a treatment protocol I was diagnosed in 2010 , but the doc said I probably had most of my life.

  76. Ian Rossiter says

    I am diagnosed as a celiac and on a gluten free diet but I’m still having stomach pain every time I eat no matter what it is.

  77. Mickie says

    I was diagnosed with celiac disease after I had my first child, 6 years ago. I still don’t fully understand and would love to get some more info.

  78. Tanya says

    I meet all criteria so am interested in trial. I still suffer a lot of pain even though totally GF and also on low FODMAPs.

  79. Maxine Brem says

    I was diagnosed in a biopsy a few years ago although my blood tests over the last 20 years do so were negative. I have always had coeliac problems and close relatives on both sides of my family were coeliacs. I would be very interested in participating in your survey as a volunteer.

  80. sarah maher says

    Hi being diagnosed since april 14 by a professional not suffering also my mother and 2 brothers are coeliac s aswell….who are suffers

  81. Nicolle says

    Diagnosed Celiac 2 years ago & diagnosed Type 1 Diabetic 30 years.
    I may be interested in being involved in a study that helps me learn more

  82. Donna Thorpe says

    I have coeliac disease and follow a gluten free diet I am 46 and would love to participate

  83. Robert Rollins says

    I am very interested in volunteering for your study. I was diagnosed a Celiac about 8 years ago and maintain a gluten free diet 98% of the time.
    Yours, Robert Rollins

  84. Robert Rollins says

    I have been a celiac for about 10 years and would be very interested in volunteering for your study.
    Yours, Robert Rollins

  85. Annette littlejohn says

    Diagnosed celiac disease 2011. Gluten free every since. My daughter was celiac and also hypothyroid/Hashimotos. She passed away from thyroid disease on 9-30-2011. She was a gluten free warrior.

  86. Carrie says

    Interested in help for celiac disease, diagnosed about 15 years ago and being as gluten free as possible. Would like to take part in study

  87. terrie lansford says

    I was diagnosed in march 2014, after 6 horrible months. I have successful been gluten free for 8 weeks.

  88. Mackenzie Scott says

    Diagnosed with Celiac Disease in 2010 and try to eat gluten free. It’s tough!

  89. Lizna Boshoff says

    I would love to be part of this study! I was diagnosed in February 2014, but live in South Africa where most doctors unfortunately don’tanything about Celiac disease. The specialist who did the topsy on me told me to go to a dietician and Google Celiac…really wish I could be part of this.

  90. Slavka Wilke says

    I have been diagnosed with CD last year and I would like to participate as well. Slavka

  91. Mariel Duenas says

    I’ve been diagnosed celiac about two months ago and it’s a nightmare because in my country (Peru) this is a rare condition. I would love to help. I have diarrea everytime I eat gluten.

  92. Michelle Stoehr says

    I just had an endoscopic and colonoscopy and they did a biopsy and it came back with celiac, I go back on September 5, 2014 for more blood work and to discuss my options. I am a person who never whatched what I eat and I love food, I am having a hard time finding the right foods to look for and what I can and can’t eat.

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