Celiac Disease & Gluten Sensitivity: A New Study Identifies Differences

No Wheat

Over ten years ago I was diagnosed with celiac disease.  About six months ago one of my children (now 19) developed symptoms of celiac.

He had a blood test and an endoscopy with multiple biopsies done.  Both were negative.  His symptoms clearly resolve on a gluten-free diet though.  Either the tests were falsely negative or he has non-celiac gluten sensitivity.

Earlier this month researchers at the University of Maryland Center for Celiac Research released results of a study which showed that there are differences between celiac disease and gluten sensitivity.  The two are considered to be part of a spectrum of disorders caused by gluten.  However, Dr. Fasano said,

“We found differences in levels of intestinal permeability and expression of genes regulating the immune response in the gut mucosa,”

It is good news that doctors are recognizing gluten sensitivity as a true medical condition.  Doctors at the University of Maryland expect information from studies such as this one to lead to new diagnostic tools and treatments for those with gluten sensitivity.

You can read more about the study at these sites:

University of Maryland
About.com
The Savvy Celiac




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Comments

  1. My husband can eat wheat products–sometimes–but he can also tell when he overdoes it. He’d been tested for Crohn’s, IBS, all those, and everything came back negative, so last fall I finally was able to talk him into going gluten-free, and boy did that make a difference! He felt better, looked better, wasn’t bloated, didn’t have gas, didn’t have diarrhea on a regular basis, etc. He found this article on the Wall Street Journal and grudgingly admitted I might know what I’m talking about sometimes. :)
    http://online.wsj.com/article/SB10001424052748704893604576200393522456636.html

  2. I was tested negative too, but clearly have a severe gluten sensitivity from a crumb. It is very frustrating. My 4 year old has the same issue as your son. She tested negative but all her headaches, leg pains, stomach pains, and nightmares stopped once she went gf. I think the tests are accurate enough to cover all areas of gluten issues. I am glad they are realizing its not just celiacs that have severe gluten problems.

  3. I’m going to do a post about this study this week, too. I have a gluten sensitivity, actually something called Fructose Malabsorption. I’m really glad more research has been done around some of the issues that so many people have with gluten!

  4. Jennifer Minitrez says:

    I am curious about how much of the issues that we face with food could be cross contamination. If it’s not wheat, could it be corn… If it’s not corn, could it be soy?… I know that when I was diagnosed with Celiac’s the somatic issues didn’t go away entirely so I had to sit and, once again, re-evaluate what I was eating, drinking and using on a daily basis. Then I eliminated soy, and anything with a cross contamination warning on it. It was almost overnight that this happened to me.
    I am also allergic to latex and that eliminates a whole host of other foods as well.

    • I know that for me and my son, cross contamination is a big issue. I also agree about other foods causing problems. Maybe people with one food sensitivity are prone to other food sensitivities as well. I am dairy free and mostly soy free. Thanks for your comment.

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